Patients & Families

Molecular profiling or tumour profiling, is a method of testing that finds mutations in the DNA of your cancer that may be causing your cancer to grow. Identifying mutations may help your clinician identify a targeted therapy, immunotherapy or a clinical trial that may be right for you.

Rare Cancer Australia (RCA) provides support and advocacy for patients taking the decision to participate in our Programs. If you or your family needs a place to learn, someone to listen, help with navigating the journey or advice, RCA can help.

If you are 12 – 25 and your world has been turned upside down by cancer, Canteen can provide support and someone to talk to.

The Australian Rare Cancer (ARC) Portal is an online referral service that aims to improve outcomes and access to research for Australians diagnosed with a rare cancer.

Working together with your existing cancer specialist, the ARC Portal offers expert clinical advice, particularly for Australians who live outside the major cancer treatment centres in metropolitan areas.

If you are:

• aged 18 years and older, with advanced solid or blood cancer of any type, or are newly diagnosed with a pathologically confirmed metastatic non-squamous non-small cell lung cancer (mNSCLC)
  have tissue available for molecular screening or already have a molecular profiling report available
• your cancer is not responding to standard treatment or no standard treatment is available
• not pregnant, breast feeding or planning to become pregnant, and
• out of bed and active at least half of the day

speak to your clinician about our programs.

If you are:

• Patients aged 40 years and under who have been diagnosed with a cancer
• Patients less than 50 years old who’ve been diagnosed with two different cancers
• Patients diagnosed with three or more cancers at any age

speak to your clinician about joining the RisC program.